Does anyone know why they renamed the Cancer Man the Cigarette Smoking
Man? Did someone put pressure on the producers to make the change?

I don’t think it was ever changed. “Cancer Man” was Mulder’s name for him. The
official name, as far as I know, has always been Cigarette Smoking Man.

I heard that the tobacco companies had big big problems with ‘Cancer’ Man,
so to aviod complications, they started calling him CSM.

Lets put it this way, even Mulder refers to him as the Cigarette Smoking
Man now. Nobody on the show uses the title Cancer Man anymore.
Is it possible Big Tobacco paid someone a visit?

In the earliest scripts, he’s ID’d as Cigarette Smoking Man, or CSM
for short (and for his dialogue headers). Mulder occasionally refered
to him as Cancer Man, and even Black-Lunged SonofaBitch, but these were
more terms of endearment than actual names.

By the way, in Sleepless, Deep Throat’s replaceent (X?) was originally
written as a woman.

1. http://www.docs4patients.com/otherresources.asp Docs4Patients.com
Health information for surgical procedures, family health, patient
education, informed consent, patient bill of rights, risk

2. http://congress.nw.dc.us/pac/ Write Congress for a Real Patient Bill
of Rights — Patient Access Coalition

3. http://www.aha.org/resource/pbillofrights.html AHA – Resource Center
– Patient Bill of Rights

4. http://www.patientrights.com/ Patient Rights.com

7. http://www.wellweb.com/GRASS/p_rights.htm Patient’s Rights And
Responsibilities

10. http://www.nationalcpr.org/robinkaigh.html Coalition for Patient
Rights — Robin Kaigh’s editorial

12. http://www.nationalcpr.org/lookitup.html Coalition for Patient
Rights — Look It Up!

13. http://congress.nw.dc.us/cpr/ Legislative Action Center — Natl
Coalition for Patient Rights

14. http://www.nationalcpr.org/aboutcpr.html About CPR – the Coalition
for Patient Rights

18. http://www.nationalcpr.org/joincpr.html Join the Coalition for
Patient Rights

19. http://wellweb.com/pain/rights.htm AAPM – Patient’s Bill of Rights

20. http://www.nationalcpr.org/petition.html Coalition for Patient
Rights — Sign Our Petition

22. http://aspe.os.dhhs.gov/health/vpreport.htm Patient’s Bill of Rights
Report*

23. http://www.pharmacy.state.az.us/link2.htm Pharmacy Patient’s Bill of
Rights

24. http://www.islandnet.com/~deathnet/pat_rights.html Patient’s Rights
Self-Determination

25. http://www.wma.net/e/policy/17-h_e.html World Medical Association
Declaration on the Rights of the Patient

26. http://www.miner.rochester.edu/strong/patient/patrr.htm URMC/SMH
Patient Rights and Responsibilities

28. http://www.nwu.edu/health/ptrights.html NU Health Service – Patient
Rights and Responsibilities

29. http://www.noah.cuny.edu/patients.html Ask NOAH About: Patient’s
Rights and Resources, and Physician Information

30. http://www.legis.state.il.us/ilcs/ch215/ch215act134.htm 215 ILCS
134/ Managed Care Reform and Patient Rights Act

31. http://www.babyzone.com/drnathan/medref/patientbor.htm Patient Bill
of Rights – Choosing a Hospital

32. http://www.jupitereye.com/rights.html Patient Bill of Rights

33. http://congress.nw.dc.us/cpr/billstatus.html Federal Bill Status –
— Natl Coalition for Patient Rights

34. http://www.canhelp.com/CANHELP/BillofRights/cancer.htm The Cancer
Patient’s Bill of Rights

35. http://www.cancer.ca/info/pubs/rightse1.htm Canadian Cancer Society
Publications – Patient’s rights and responsibilities

37. http://www.legis.state.il.us/ilcs/ch410/ch410act50.htm 410 ILCS 50/
Medical Patient Rights Act

38. http://www.docs4patients.com/informed-consent.asp Docs4Patients.com
Health information for surgical procedures, family health, patient
education, informed consent, patient bill of rights, risk

39. http://www.familiesusa.org/pborup.htm Patient’s Rights Update –
March, 2000

40. http://www.medhelp.org/ Med Help International The Patient Medical
Information Center

41. http://gis.mgh.harvard.edu/rights.htm Patient Rights
Responsibilities ~ Neuro Care Units Guest Information System

42. http://clinicalfreedom.org/LEGIS98.HTM Legislation ’98: From Patient
Rights to Medicare Reform Fights.

43. http://boards.allhealth.com/messages/get/bhpatientrights1.html
Patient Rights & Advocacy

44. http://www.newsday.com/ap/rnmpwh0k.htm Patient Rights Bill To Be
Completed

45. http://www.svhs.org/rights.html PATIENT GUIDE – YOUR RIGHTS AND
RESPONSIBILITIES

46. http://libertyresources.org/mc/mc-05.html Managed Care – Patient’s
Bill of Rights

47. http://plague.law.umkc.edu/aspen/Aspen-MANAGING.html Chapter 1 –
Preventive Law in the Medical Environment – MANAGING PATIENT’S RIGHTS
PROBLEMS

48. http://occ-env-med.mc.duke.edu/oem/billrits.htm AOEC (The
Association of Occupational & Environmental Clinics) Patient Bill of
Rights website has Moved!

49. http://plague.law.umkc.edu/aspen/Aspen-Chapter-10.html Chapter 1 –
Preventive Law in the Medical Environment – Chapter 10 – Patient’s
Rights

50. http://www.nationalcpr.org/HHS.html”>Coalition for Patient Rights —
HHS

ADVISE FOR NEW PATIENTS

1. http://www.dentistry.vcu.edu/orth/patinfo/pi_new.htm Patient
Information – New Patients

2. http://www.mercola.com/1999/jan/24/painkiller.htm NEW PAINKILLER
MIGHT BE A BITTER PILL FOR SOME PATIENTS

3.http://service.stpaul.com/appl-www-sfm-med-common/assets/hcfaarticle.asp
New HCFA Regulations on Patients Rights

4. http://www.cooleyville.com/cancer/ Patients Helping Patients

5. http://rarediseases.info.nih.gov/ord/ct-info-patient.html Clinical
Trials Information for Patients – Office of Rare Diseases

6. http://www.ada.org/adapco/daily/archives/9910/1004web.html ADA
launches new Web campaign for patients’ rights

1. http://www.docs4patients.com/otherresources.asp Docs4Patients.com
Health information for surgical procedures, family health, patient
education, informed consent, patient bill of rights, risk

2. http://congress.nw.dc.us/pac/ Write Congress for a Real Patient Bill
of Rights — Patient Access Coalition

3. http://www.aha.org/resource/pbillofrights.html AHA – Resource Center
– Patient Bill of Rights

4. http://www.patientrights.com/ Patient Rights.com

7. http://www.wellweb.com/GRASS/p_rights.htm Patient’s Rights And
Responsibilities

10. http://www.nationalcpr.org/robinkaigh.html Coalition for Patient
Rights — Robin Kaigh’s editorial

12. http://www.nationalcpr.org/lookitup.html Coalition for Patient
Rights — Look It Up!

13. http://congress.nw.dc.us/cpr/ Legislative Action Center — Natl
Coalition for Patient Rights

14. http://www.nationalcpr.org/aboutcpr.html About CPR – the Coalition
for Patient Rights

18. http://www.nationalcpr.org/joincpr.html Join the Coalition for
Patient Rights

19. http://wellweb.com/pain/rights.htm AAPM – Patient’s Bill of Rights

20. http://www.nationalcpr.org/petition.html Coalition for Patient
Rights — Sign Our Petition

22. http://aspe.os.dhhs.gov/health/vpreport.htm Patient’s Bill of Rights
Report*

23. http://www.pharmacy.state.az.us/link2.htm Pharmacy Patient’s Bill of
Rights

24. http://www.islandnet.com/~deathnet/pat_rights.html Patient’s Rights
Self-Determination

25. http://www.wma.net/e/policy/17-h_e.html World Medical Association
Declaration on the Rights of the Patient

26. http://www.miner.rochester.edu/strong/patient/patrr.htm URMC/SMH
Patient Rights and Responsibilities

28. http://www.nwu.edu/health/ptrights.html NU Health Service – Patient
Rights and Responsibilities

29. http://www.noah.cuny.edu/patients.html Ask NOAH About: Patient’s
Rights and Resources, and Physician Information

30. http://www.legis.state.il.us/ilcs/ch215/ch215act134.htm 215 ILCS
134/ Managed Care Reform and Patient Rights Act

31. http://www.babyzone.com/drnathan/medref/patientbor.htm Patient Bill
of Rights – Choosing a Hospital

32. http://www.jupitereye.com/rights.html Patient Bill of Rights

33. http://congress.nw.dc.us/cpr/billstatus.html Federal Bill Status –
— Natl Coalition for Patient Rights

34. http://www.canhelp.com/CANHELP/BillofRights/cancer.htm The Cancer
Patient’s Bill of Rights

35. http://www.cancer.ca/info/pubs/rightse1.htm Canadian Cancer Society
Publications – Patient’s rights and responsibilities

37. http://www.legis.state.il.us/ilcs/ch410/ch410act50.htm 410 ILCS 50/
Medical Patient Rights Act

38. http://www.docs4patients.com/informed-consent.asp Docs4Patients.com
Health information for surgical procedures, family health, patient
education, informed consent, patient bill of rights, risk

39. http://www.familiesusa.org/pborup.htm Patient’s Rights Update –
March, 2000

40. http://www.medhelp.org/ Med Help International The Patient Medical
Information Center

41. http://gis.mgh.harvard.edu/rights.htm Patient Rights
Responsibilities ~ Neuro Care Units Guest Information System

42. http://clinicalfreedom.org/LEGIS98.HTM Legislation ’98: From Patient
Rights to Medicare Reform Fights.

43. http://boards.allhealth.com/messages/get/bhpatientrights1.html
Patient Rights & Advocacy

44. http://www.newsday.com/ap/rnmpwh0k.htm Patient Rights Bill To Be
Completed

45. http://www.svhs.org/rights.html PATIENT GUIDE – YOUR RIGHTS AND
RESPONSIBILITIES

46. http://libertyresources.org/mc/mc-05.html Managed Care – Patient’s
Bill of Rights

47. http://plague.law.umkc.edu/aspen/Aspen-MANAGING.html Chapter 1 –
Preventive Law in the Medical Environment – MANAGING PATIENT’S RIGHTS
PROBLEMS

48. http://occ-env-med.mc.duke.edu/oem/billrits.htm AOEC (The
Association of Occupational & Environmental Clinics) Patient Bill of
Rights website has Moved!

49. http://plague.law.umkc.edu/aspen/Aspen-Chapter-10.html Chapter 1 –
Preventive Law in the Medical Environment – Chapter 10 – Patient’s
Rights

50. http://www.nationalcpr.org/HHS.html”>Coalition for Patient Rights —
HHS

ADVISE FOR NEW PATIENTS

1. http://www.dentistry.vcu.edu/orth/patinfo/pi_new.htm Patient
Information – New Patients

2. http://www.mercola.com/1999/jan/24/painkiller.htm NEW PAINKILLER
MIGHT BE A BITTER PILL FOR SOME PATIENTS

3.http://service.stpaul.com/appl-www-sfm-med-common/assets/hcfaarticle.asp
New HCFA Regulations on Patients Rights

4. http://www.cooleyville.com/cancer/ Patients Helping Patients

5. http://rarediseases.info.nih.gov/ord/ct-info-patient.html Clinical
Trials Information for Patients – Office of Rare Diseases

6. http://www.ada.org/adapco/daily/archives/9910/1004web.html ADA
launches new Web campaign for patients’ rights

Does anyone know why they renamed the Cancer Man the Cigarette Smoking
Man? Did someone put pressure on the producers to make the change?

I don’t think it was ever changed. “Cancer Man” was Mulder’s name for him. The
official name, as far as I know, has always been Cigarette Smoking Man.

I heard that the tobacco companies had big big problems with ‘Cancer’ Man,
so to aviod complications, they started calling him CSM.

Lets put it this way, even Mulder refers to him as the Cigarette Smoking
Man now. Nobody on the show uses the title Cancer Man anymore.
Is it possible Big Tobacco paid someone a visit?

In the earliest scripts, he’s ID’d as Cigarette Smoking Man, or CSM
for short (and for his dialogue headers). Mulder occasionally refered
to him as Cancer Man, and even Black-Lunged SonofaBitch, but these were
more terms of endearment than actual names.

By the way, in Sleepless, Deep Throat’s replaceent (X?) was originally
written as a woman.

In recent years, to reduce costs, the managed-care system has
encouraged primary-care doctors with no psychiatric training to treat
the more common mental-health problems. Physicians follow treatment
“protocols”-formulas dictating when to prescribe
medications-based on simple symptom checklists. Under pressure to
keep expenses down and meet service quotas, doctors have little time to
discuss a patient’s history or current circumstances. Glenmullen
points out in Prozac Backlash that the introduction of the SSRI
(selective serotonin reuptake inhibitor) antidepressants such as
Prozac, Paxil, and Zoloft, with ¨¬their one-size-fits-all-patients ease
of use and broad applicability for dozens of conditions,0Š6 has
facilitated the outsourcing of mental-health care: ¨¬[M]anaged-care
insurers,0Š6 he writes, ¨¬[have] pressed primary-care doctors to limit
the treatment of depression and psychiatric conditions to drugs with no
regard whatever for the long-term consequences for patients.0Š6

Ronald Kessler’s findings suggest that these policies undermine the
quality of care patients receive. The number of people seeking
mental-health treatment from general practitioners has increased by 150
percent in the past 10 years. In many cases, Kessler points out, the
physician didn’t complete the necessary clinical assessment, didn’t
prescribe the appropriate therapy, or failed to provide ongoing
monitoring. Based on these criteria, he asserts, only 12.7 percent of
patients receiving treatment in this sector obtained “an acceptable
standard of care.”

In the letters to the editor section of the Chronicle Journal, October
23, 2004, I am glad to see that the chairman of the board of the
Thunder Bay Regional Hospital, Mr. Ron Nelson is moving to increase
the number of full time nurses jobs at the hospital. It was a point
that I brought forward two years ago at the annual hospital board
meeting years ago and was one of the reasons we were losing qualified
nurses to the US; graduate nurses could not find full time
employment.

It is interesting to note that Mr. Ron Nelson was one of my professors
at Lakehead University School of Business some 25 years ago, and at
that time it was taught to me that the way of the future was to
implement a ‘system’s approach’ to decision making in organizations.
In fact it was described as linear matrix, where everyone was equally
important and involved in the decision making process.

I say this because just last week I attended a presentation whereby
Dr. Yaro Kotalik announced that the province of Ontario was moving to
impliment a ‘systems approach’ to health care, the last province to do
so.

So while the province of Ontario lags behind many of the generally
accepted approaches to health care, I take this opportunity to offer
my former professor, the chair of the Board of Govenors, the following
recommendations.

1. Expand the environment that will hold a greater compassion towards
the staff, nurses, doctors, and administrators in dealing with the
complex challenges of a changing world. We MUST NOT expect perfection,
there is always room for improvements; nothing is perfect.

2. Expand the system to develop a complete integrated vertical matrix
system of ALL affected parties in and outside the hospital relating to
health services provided. More staff representation on decision making
committees. (Sars has taught us the important role of cleaning staff
and procedures)

3. Hire more specialized qualified nursing staff, ie Geriatric Nurses.
Use a team approach. (The hospital just announced that they are hiring
more full time staff)

4. Improve the integrity of review services to investigate
compliments, and more importantly complaints to determine, with hind
site the important details that would avoid such problems in the
future. Mandatory feedback forms. (To improve a system you want to
know whats wrong- the devil is in the (missing) details.

4. Develop a framework for staff to deal with the negative effects of
prescription drugs.

Ie Vioxx, and PPA – side effects, adverse effects, paradoxical
effects.

5. Expand the use of modern technology to improve the efficiency of
services.

6. Prevention is the cure. Analysis of clients to find core problems
and make suggestions.( Ie: Baseball safety first base developed to
avoid injuries. ) More focus on client behaviors that lead to
hospitalization. .

7. More security in the hospitals for visitors. While staff have
professional codes, visitors do not. Family visitors should receive
free parking passes.

8. Pressure the government to make our system a truer public system,
our system is merely an univerally funded government insurance plan.
Most services are provided by private sectors except for hospitals.
and place doctors on a per capita salary. The current fee structure
creates an inverse relationship between a doctor’s revenue and the
patients health. The current fee per visit system employed by Medicare
towards family doctors as it rewards inefficiencies, ineffective
treatments, and a doctor shortage; all of which put more an more
pressure on the hospitals.

9. Non-profit hospitals normally operate in the red, and use a great
deal of public funds to build, private hospitals while competition to
the public hospitals, if they bill through the medicare program, like
clinics, they are a great suppliment to our overburdened health
system.

10. Judging by the lack of participation in the election of hospital
board members at the annual meeting it is hoped the the province is
allow for a democractic election of representatives perhaps at
municipal elections.

Let us make the hospitals more democratic, we are in Canada.

There are very few sites with actual mental health
help. There are a lot asking for volunteers. Some
of the below websites are articles telling you what
the signs of PTSD are. A lot of them give suggestions
to ameliorate symptoms, especially in children.

The people affected by Hurricane Katrina are going to
need a LOT of mental health counseling. Not only
have they lost all their possessions, in many cases
families have missing kids, parents or babies.

These Americans have no jobs, no homes and an
unknown future. Missing pets are an additional agony
of the mind, especially for the elderly and the children.

MENTAL HEALTH:

Texas Department of State Health Services:
Hurricane Katrina Information for Health Care Professionals
and Allied Fields
http://www.dshs.state.tx.us/dshstoday/kat_professionals.shtm

Tiny URL = http://tinyurl.com/ccgpp

HHS Releases Website and Toll Free Number for Deployment
by Health Care Professionals
http://biz.yahoo.com/prnews/050903/nysa024.html?.v=1

U.S. Department of Health and Human Services
Health Care Professionals and Relief Worker Page
https://volunteer.ccrf.hhs.gov/

RedNova News – Health – NAMI Creates Dedicated Fund
for Hurricane Disaster Relief for Mental Illness
http://www.rednova.com/news/display/?id=228827&source=r_health

Tiny URL = http://tinyurl.com/dno4q

Coping with Disaster
http://www.nmha.org/reassurance/anniversary/index.cfm

Medscape Psychiatry & Mental Health Homepage
http://www.medscape.com/psychiatryhome

CDC – Disaster Mental Health
http://www.bt.cdc.gov/mentalhealth/

Attorneys, Mental-Health Professionals, Others Mobilize
in Wake of Katrina – Pennywit.com
http://www.pennywit.com/drupal/node/3198

Hurricane Katrina – Public Health

http://www.washingtonpost.com/wp-dyn/content/discussion/2005/09/01/DI…

National Mental Health Association
http://www.nmha.org/

DisasterResponse: NBCC (National Board for Certified Counselors
and Affiliates)
http://www.nbcc.org/disasterresponse

PsysPORT.com: Mental-Health Professionals Prepare to
Offer Aid

http://www.psycport.com/showArticle.cfm?xmlFile=krdigital_2005_09_04_…
provider=Philadelphia%20Inquirer

Tiny URL = http://tinyurl.com/a9tgq

Oklahoma – grief counseling offered (have to register)
NewsOK.com
http://www.newsok.com/xml/rss/1605385/

Berkeley, California sending mental health professional
for rescue workers.
Berkeley Daily Planet
http://www.berkeleydailyplanet.com/article.cfm?issue=09-02-05&storyID…

Tiny URL = http://tinyurl.com/axpk3

Albany, Oregon – Call for medical volunteers
Albany Democrat-Herald: Archives
http://www.democratherald.com/articles/2005/09/03/news/local/news08.txt

Tiny URL = http://tinyurl.com/9u487

Red Cross phone number for mental health/disability inquiries only
Red Cross Hurricane Guidelines: South Florida Sun-Sentinel

http://www.sun-sentinel.com/news/local/southflorida/sfl-predcross02se…

Tiny URL = http://tinyurl.com/a4dvw

American Psychological Association
APA Help Center: Disasters & Terrorism:
“Managing Traumatic Stress: After Hurricane Katrina”
http://www.apahelpcenter.org/articles/article.php?id=107

HOSPITALS:

University of Alabama Medical Center, Birmingham, Alabama
took in neonatal babies
UAB Health System | UABHS Responds to Hurricane Katrina
http://www.health.uab.edu/show.asp?durki=83722

Meanwhile, Health and Human Services Secretary
Mike Leavitt announced Friday that the first 10 federal
medical shelters will be located at military facilities
throughout the Gulf region to provide basic health-care
services for hurricane victims. He added that almost
100 tons in vital medications and supplies have been
shipped since last weekend, and are being distributed.

Vanderbilt University Medical Center, Tennessee
http://www.vanderbilt.edu/katrina/vumc.html

…status of patients and staff of Trinity Neurologic Rehab
in Slidell, LA. Mailing List
Yahoo! Groups : trinityslidell
http://groups.yahoo.com/group/trinityslidell/

Kansas
KCTV Video Player
http://www.kctv5.com/global/video/popup/pop_player.asp?ClipID1=515757&
h1=Young%20Patients%20Receiving%20Care%20in%20Metro&vt1=v&
at1=News%20-%20Special%20Coverage&d1=122334&LaunchPageAdTag=News&activePane=info&playerVersion=9&
rnd=90701051

Tiny URL = http://tinyurl.com/dq44b

NB: Above link is to a video playback of the news item….
Dozens of young victims were evacuated out of a children’s
hospital in New Orleans to Children’s Mercy in Kansas City
earlier in the week. KCTV5’s Liana Joyce has an update on
the efforts to help those families.
More >>

Alabama Hospital Association – Patient Locator
http://www.alaha.org/hurricane.html

Louisiana
La Health & Hospitals – Find missing loved ones:
1-866-GET-INFO (438-4636)
Louisiana Department of Health & Hospitals
http://www.dhh.state.la.us/

Mississippi Hospital Association
http://mhanewsnow.typepad.com/pressroom/

HEALTH

DHH Emergency News – Louisiana
http://www.dhh.louisiana.gov/offices/page.asp?ID=145&Detail=5148

Alabama Department of Public Health
http://www.adph.org/Default.asp?bhcp=1

Mississippi Department of Health:
Hurricane Recovery News & Information
http://www.msdh.state.ms.us/msdhsite/_static/44,2022,122,218.html

State of Missouri – State Emergency Management Agency
http://sema.dps.mo.gov/semapage.htm

Florida Department of Health Home Page
http://www.doh.state.fl.us/index.html

Oklahoma Health Care Authority – Hurricane Katrina Information
http://www.ohca.state.ok.us/about/katrina.asp

Texas Department of State Health Services:
Hurricane Katrina Information for Health Care Professionals &
Allied Fields
http://www.dshs.state.tx.us/katrina/kat_professionals.shtm

Texas Department of State Health Services:
Hurricane Katrina Information and Resources
http://www.dshs.state.tx.us/katrina/katrina.shtm

Hurricane Katrina – DeafNetwork.com
http://www.deafnetwork.com/katrina/

WHOI: Peoria – On Call for Hurricane Evacuees
http://www.hoinews.com/home/headlines/1812467.html

Hurricane-Related Information for Health Care Professionals:
Government Guide:
http://www.governmentguide.com/ams/clickThruRedirect.adp…

http://www.governmentguide.com/health_and_safety/govsite.adp?bread=*M…
ames&
url=http%3A//www.governmentguide.com/ams/clickThruRedirect.adp%3F55106118%2C475143…

Tiny URL = http://tinyurl.com/e2qrl

Hurricane Katrina: Links to Health Information (includes mold)
http://www.sis.nlm.nih.gov/enviro/hurricane.html

Includes links to affected areas state health agencies
HHS: Hurricane Katrina
http://www.hhs.gov/katrina/index.html

I can’t believe this. The County Health program that I have waited six weeks to
get authorization for Remicade, has just sent me a letter that my income is too
far above poverty level and I will not receive benefits after Dec1 — I am in
shock. I am in California and it is a State/County subsidized health program.

Sorry to hear this. The only thing I can suggest is contacting Centcort and
seeing if you qualify with them for help to get the Remicade.

I went through the same thing when my 24 yr. old was a
sick infant. I was too rich to get medical assistance for her because I
owned a car. I said that I could sell it but then when I asked the
caseworker if she would transport me to and from work and the daycare, so I
could keep my job she had the nerve to say no.

I also would liek to add that states have been cutting medicaid like crazy,
in part due to funding cuts from botht eh congress and the Bush
administration. This crunch will ease a bit when the full medicare Rx plan
goes into effect, kicking many seniors out of medicaid.

I am very sorry for your situation. I really don’t know what to offer you.
I would contact some local and federal elected officials and get them on
your side.

Would someone post for me the medical name for elephant man’s disease and
tell me if there is and where to find a FAQ regarding this malady?

Any other info on this subject would be greatly appreciated.

It was thought that he had von Recklinghausen’s Neurofibromatosis,
but I seem to recall someone recently published an article dissenting
from that view.

It’s been a while since I did any pathology, but I believe it’s
called neurofibromatosis, and should be in any good pathology text.

The Elephant man had the so-called Proteus syndrome,and not von
Recklinghausen’s neurofibromatosis as it was long thought! For details, see
the articles by Tibbles JAR and Cohen MM in the British Journal of Medicine
1986:293:683-685 and by Cohen MM in the American Journal of Medical
Genetics 1988:29:777-782.I don’t knoe if there is a FAQ regarding this
disease.

Hey All it is me again. I found this artical in the McCall’s Magazine
also. Thought it may be of some help to someone.

The development of the vaccine is good news for people who live where
the illness is most common: the northeast coast from Maine to
Maryland, and in Wisconsin, Minnesota and a few counties in northern
California. It helps the body gain immunity against Lyme-disease
bacteria, which are transmitted to humans through tick bites. But the
vaccine, which will cost about $ 150 for three shots plus doctor’s
fees, doesn’t provide 100 percent protection. Recipients must still
check their bodies for ticks. Given the vaccin’s limitations, it’s
recommended only for select groups. According to the Centers for
Disease Control and Prevention, it’s appropriate for those who live,
work or play where Lyme disease is prevalent and who have frequent or
prolonged exposure to tick habitats, especially wooded areas, brush
and tall grass. For example, if you garden in a tick-infested area and
your yard is edged by forest, you may want to think about getting the
shots. People with more limited exposure may also be candidates for
the injections. Check with your doctor. The vaccine is not advised for
pregnant women or adults who have Lyme disease that has not responded
to treatment. The U.S. Food and Drug Administration hasn’t approved it
for use by children younger than 15.

Lyme activists also point out that because of the
timimg of the shots, and because at present there
is no reliable test (I have a friend who is being
treated for neuro Lyme with IV anti-biotics who
re-tested negative and would have been denied by
her ins. company except that the LLMDs stuck up
for her) that the vaccine could mask already
active Lyme. There are so many politics going on
here with insurance and CDC trying to play down
the extent ( see how cross people get with us
using up resources as basic as handicapped
parking) that people get severely neglected. There
should be a better test coming maybe in the Fall
and my advice is to use self-examination and
tick-checking as your first line of defence. Art
Doherty posts here often because FM and Lyme
present similar symptoms.
Here is the Lyme NG and a site for Lyme info
http://www.lyme.org/index2.html

This is most interesting. I was listeneng to NPRadio in Canada & some research
they’ve been doing w/all syndromes & diseases that are autoimmune or similar is
that maybe we all had Lyme disease at some point. Anyone else hear that last
wk?

What about those who had it before 1972 (or
thereabouts) when it was “discovered”? Sometimes
Lyme causes FM and often it has gone undiagnosed
and some FMers do get better with ABX but I don’t
think the link is direct for all of us. And you’d
think even with the crappy tests they have that
they could see a direct link.